Weekend update


Yesterday (Saturday) started with Madalinn repeating "I want to go home."  When I told the docs during morning rounds they made it their goal to get her out of her room.  Her nurse took her in a ride through the hospital to see the fish tank.  It brought great joy to Madalinn.  When she got back to the room she said, "I want to do that again tomorrow!"  She also got to have a girls night with Mamaw sleeping over.

Yesterday she also got off of her nasal air tube.  They decided that the Nitric-oxide was not working in her body and since she had numerous nose bleeds yesterday morning they said it was no longer needed.  This was a bit bitter sweet...Sweet because she has less tubes and more freedom.  Bitter because the medication is not working which makes me sad.

Tonight (Sunday) or tomorrow they will start increasing her meds again with hopes that they will start working.  PRAY for this.  If medications don't work our other options are difficult and not promising.  

PRAY for her pulmonary veins and arteries to open up and the muscle in them to disappear.  Pray for God to miraculously heal her body!  We know he can.  He has the authority and power to do it.


If you'd like an overview of Pulmonary Hypertension check out this video. I'm going to show it to Madalinn later today to help her understand what's going on in her body.  *Our hope is that the outcome of this video will be Madalinn's outcome...but her body needs to be responsive to the medications*
 

Comments

  1. bethany.kopechekNovember 7, 2021 at 7:21 AM

    Our family and church group have been praying daily for Madalinn and for your whole family! I read your posts aloud to my husband, and 10 seconds after I finished reading this post, an old friend who only texts me a few times a year sent me this verse, and I think it was for you!

    Wait on the Lord, be of good courage, and He shall strengthen your heart (and lungs! :-). Wait, I say, on the Lord.
    Psalm 27:14

    ReplyDelete
  2. C fox goNovember 7, 2021 at 11:13 AM

    You're all in our prayers. We hope sweet Madalinn feels 100% better soon.🥰❤🙏

    ReplyDelete
  3. hnnhflowersNovember 7, 2021 at 11:23 AM

    Chloe. We are praying. Give her allll of our hugs. ❤️

    ReplyDelete
  4. UnknownNovember 7, 2021 at 2:03 PM

    Chloe & family,

    I hope that you find these songs by The Getty’s quiet your mind and soul as you walk through these difficult times. They were such a comfort and wonderful reminder of God’s promises to me through Tracy’s cancer journey, I hope they are to you, as well. Much love, R

    I Will Wait for You PSALM 130
    https://youtu.be/_eJUqY_6tqo

    He Will Hold Me Fast
    https://youtu.be/936BapRFHaQ

    My Dwelling Place PSALM 91
    https://youtu.be/eiuNq2OWgzg

    ReplyDelete

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