She did great during the MRI. Thank you everyone for the prayers. We will get the results and plan for what's next after the pictures are read. We will keep you posted.
Continue to pray that her heart will be strong enough for future procedures.
Playing Skipbo with the Recreational Therapist Over the past two days the doctors worked hard to push her meds to reach the goal amount. This means that she dealt with side effects of nausea and headache most of the time. I was amazed at her endurance and ability to withstand it. She enjoyed time with the Physical Therapist, Occupational Therapist, and Recreational Therapist. They always have fun things to do with her. This afternoon they repeated the echocardiogram to see how the medication is effecting her heart. The discouraging news is that her heart still remains the same. Tomorrow (Wednesday) morning at 8am she goes for a long MRI from her neck to her pelvis. This MRI will last 2-4 hours. Pray that she will not have side effects from the meds while trying to lay still in the machine. Pray that time will pass quickly and that she can make it through the whole test. This MRI will give the doctors the images...
Madalinn is a sweet, caring twelve year old girl. She is a great friend, sister, and daughter. She loves stories, painting, yoga, and making movies. For as long as we can remember she has never enjoyed running and playing. When asked to play tag with friends she always said no. She'd say, "I don't like the way I feel when I run." This year we noticed increased fatigue. She no longer like to ride bikes and became anxious to go on family walks. It was hard to decide if being slow and inactive was part of her personality or if there was something physically going on. Wednesday, Oct. 27 We deiced to get her checked out when her period lasted for 4 months and the fatigue was getting worse. We suspected she was anemic. Our pediatrician listened carefully and was very thorough in ordering tests and giving referrals. My mom arrived for her scheduled visit and was able to stay with the boys while I took Madalinn to ...
Yesterday we had our first post hospital check up with the cardiologist. It was a big day that started bright and early. She had an echocardiogram, EKG, 6 minute walk test, lab work, and a 24 hr halter monitor. The great news is that her Echo showed signs of improvement in her heart which is a direct result of her medications working! Thank you for praying for that. Her heart is still seriously sick, but things are moving in the right directions! Praise to our God who heals! She did great during her 6 minute walk test. She walked more steps with fewer symptoms! She didn't have to stop at all and her heart rate only got up to 120. When she was the in the hospital going from her bed to the bathroom made her heart rate soar to 145, so 120 after six minutes of walking is SUPER! We knew she was going to rock this test because we have seen a difference in her endurance in normal daily living. She can go to the grocery store or for ...
Praying for all y’all. May God continue to give you strength for each moment. Love her beautiful smile.
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