Wednesday, Nov. 17

 No photo description available.

The past two days have been eventful and full of good changes, mostly.

Tuesday: 

  • Got an iron infusion to spur her body on to making it's own red blood cells
  • Got her pic line removed!
  • Moved to a new room!   Good Bye ICU (We miss our docs and nurses from over there though)
  • Right arm swelled and was very painful because of the medication coming into her body through her Remodelin pump.  This is totally normal and expected.


Wednesday:
  • 8am six minute walk test.  This was a repeat of the same test she had 19 days ago.  This time she was able to walk 150 ft farther, did not need oxygen, and maintained an O2 saturation of 90+.  This was much improvement!
  • Got to remove all monitors from her body...no more heart monitors, pulse ox...complete freedom!
  • Right arm pain was still around but less than yesterday.  She was able to move her arm around better.
  • Got her first shower and hair wash.  Running water beats sponge baths!  She felt so great after her shower!
  • Lots of doctors came to see her
  • We got all of the medications approved and lined up for delivery.  We should receive them all tomorrow.  This is a huge step closer to going home.
  • Got medical training lined up for tomorrow

Today we saw a little girl on our floor go home after 306 days here waiting for a heart/lung transplant.  She is still waiting, but will wait at home now.  It was so awesome to see the nurses line the hall and shout and cheer for her as we left the floor.  My brief conversation with her grandma in the parent lounge this morning really put our "short" 3 week stay in perspective.


We are still blown away at all of the love and support you all have and continue to show us.  We are truly blessed and so very thankful.  

How to Pray:
  • Pray that God will open up her blood vessels to allow the blood to flow more freely, whether by his Hand or through medications.
  • Pray for our family as the boys come home on Saturday and we anticipate being discharged soon.  Pray for readjustment to home life for everyone.  
  • Pray for us as we learn to live with Pulmonary Hypertension.  It is a huge change to now be living with & treating this disease that has no known cure.



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