April Update
It's been awhile since I've updated. Really not much has changed. Madalinn is still doing well and her body seems to be responding well to the medications. She has such great stamina that you wouldn't even realize that she has Pulmonary Hypertension. We are so thankful that this is our current reality. This week we reached an amazing milestone. Since she reached her goal dose of Remodulin last month we were able to change concentrations. Instead of having to change her pump and tubing every night, we now get to change it every 3 days! Tonight was our first night of not changing it and she said, "it feels like what life was like before I knew I had PH!" Upcoming appointments: Starting after Easter we will be having an uptick in appointments again. Monday, April 18 she will have a chest MRI. After her chest MRI, her case will presented to the Heart Cath committee for review. ...